This page is reserved for medical information on Spencer’s condition. We hope that by providing a source for exchange of information regarding hypochondrogenesis, that other children affected by this debilitating disease may be benefited as well as Spencer.

If you would like to add information to this site, please email Carol Green, Newborns in Need National Founder and the information will be placed here as quickly as possible. This site is updated on Sunday each week, pertinent information will be uploaded quicker, depending on the need.

For details on this case, please read Spencer’s story.

Help Spencer and other children by sharing your information. All submissions will be gratefully accepted, every one read carefully. Don’t wait, your information could significantly improve Spencer’s chance for life and not only life, but quality of life.  The longest a child with Spencer’s prognosis has lived thus far is 5 months. 

If you have input, don’t wait, email NOW.

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